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Multiple Sclerosis

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Dragon Bear
BIOGRAPHY:

Special Need: Multiple Sclerosis

Best Friend: Lil’ Bud and Andrew

Birthday: Ageless

Hobbies: Knitting

Favorite Movie: Baraka

ABOUT THE SPECIAL NEED:

Multiple sclerosis (MS), is a disease that destroys parts of the nerves in the central nervous system known as axons. The cause of MS is unknown, but it is suspected that a virus, environmental agent, or genetics could be the culprit. Nerves carry signals from every part of the body to the brain. Nerves function the same way that electrical signal travels through wires in your home.

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2 Axons (Normal and MS) People who have MS have a variable intensity of numbness, weakness, or visual loss.

They often complain of seeing floating spots in their vision or not being able to see objects to the far sides of their eyes. Individuals often complain of moderate to severe episodes of sharp pain that runs up and down the spine.

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There is often weakness in the arms and legs and even holding eating utensils or walking may be impossible. These problems can be extremely aggravating and can last for several days at a time and then completely resolve for an unknown time before returning.

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There are ways to make the diagnosis of MS and early detection is key for successful treatment.

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For more information, visit the following websites:

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National Multiple Sclerosis Society

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National Institute of Neurological Disorders and Strokes; set of links to answer questions and review research in the field.

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US National Library of Medicine definition, potential treatments.

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Multiple Sclerosis Association of America

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Multiple Sclerosis community providing access to others involved in the disease as well as updates on research.

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Multiple Sclerosis Journal

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Pediatric MS Centers

Center for Pediatric-Onset Demyelinating Disease at the Children’s Hospital of Alabama
CHB 314K, 1600 7th Ave South, Birmingham, AL 35233
Center director: Jayne Ness, MD, PhD, 205-996-7850

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UCSF Regional Pediatric MS Center
350 Parnassus Avenue, Suite 304, San Francisco, CA 94117
Center director: Emmanuelle Waubant, MD, PhD, 415-353-3939

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Pediatric Multiple Sclerosis Center at Loma Linda University Children’s Hospital
2195 Club Center Drive, Suite A, San Bernardino, CA 92408
Center director:  Gregory Aaen, MD, 909-835-1810

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Partners Pediatric MS Center at the Massachusetts General Hospital for Children
Yawkey Center for Outpatient Care, Suite 6B, 55 Fruit St., Massachusetts General Hospital, Boston, MA 02114
Center director: Tanuja Chitnis, MD, 617-726-2664

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Pediatric Multiple Sclerosis and Related Disorders Program at Boston Children’s Hospital
Fegan 11, 300 Longwood Avenue, Boston, MA 02115
Center director:  Mark Gorman, MD, 617-355-2751

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Mayo Clinic Pediatric MS Center
200 1st St. SW, Rochester, MN 55905
Center directors: Marc A. Patterson, MD & Moses Rodriguez, MD, 507-293-0378

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Pediatric MS Center of the Jacobs Neurological Institute
219 Bryant St., Buffalo, NY 14222
Center director: Bianca Weinstock-Guttman, MD, 877-878-7367, PedMS@thejni.org

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Lourie Center for Pediatric MS at Stony Brook University Hospital
Department of Neurology, HSC-T12-020, Stony Brook University, Stony Brook, NY 11794-8121
Center director: Lauren Krupp, MD, 631-444-7802, info@pediatricmscenter.org

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The Blue Bird Circle Clinic for Multiple Sclerosis, Texas Children’s Hospital
6701 Fannin Street, 9th Floor, Houston, TX 77030
Center director:  Timothy Loetze, MD, 832-822-5046

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Top 10 Treatment Centers (according to NewsMax)

The Mellen Center for Multiple Sclerosis:

This center is a part of Cleveland Clinic’s Neurological Institute. It is renowned for its state-of-the-art facilities and specialized care in offering treatment for multiple sclerosis. The Mellen Center has been identified as one of the world’s largest and the most comprehensive multiple sclerosis treatment and research centers.

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The Maryland Center for Multiple Sclerosis:

A part of Maryland University, the center is dedicated to offering services related to both diagnosis as well as treatment of multiple sclerosis. It is recognized as a key center for developing innovative therapy options related to the prevention and cure of multiple sclerosis. 

The center is recognized for its hyperbaric therapy sessions, which treat different types of diseases. The center is located in Cumming, Georgia.

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The John Hopkins Multiple Sclerosis Center:

Renowned for its experienced staff, this medical center for multiple sclerosis aims at offering the latest therapies for the treatment of multiple sclerosis to patients registering themselves at the institution. 

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Winthrop University Hospital

Winthrop University Hospital is a multiple sclerosis treatment centers affiliated with the National Multiple Sclerosis Society. A complete range of the latest treatment options and diagnoses is offered for multiple sclerosis at this center. A well-trained team of specialists ensures the best healthcare opportunities. 

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Mayo Clinic, Minnesota

Several multiple sclerosis treatment options are offered at The Mayo Clinic. It is particularly recognized for its pediatric multiple sclerosis treatment options.

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Multiple Sclerosis Rehabilitation Research and Training Center

The center is primarily recognized for newer, innovative research initiatives aimed at developing treatment modalities for multiple sclerosis.

 

Multiple Sclerosis Research Center, New York

The center is undertaking several studies to identify the perfect treatment option most suitable for multiple sclerosis, primarily by using adult stem cells.

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The Allegheny General Hospital

The hospital has a focused Multiple Sclerosis Treatment Center, which has been operational for over 15 years. It has become one of the largest multiple sclerosis treatment centers in the U.S.

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Jacobs Neurological Institute

This U.S. treatment center is recognized for its pediatric multiple sclerosis care options.

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